It was around four years ago while running a company I owned with my wife Sonia, that we were approached by Linda & Kate Turner along with Zlatko Kopecki and Laraine Frost to see if we were interested in supporting them to raise awareness for Epidermolysis Bullosa (EB) and help to fundraise for The Butterfly Children around Australia.
For those of you who are not yet aware Kate Turner suffered from a very serious case of EB but was also an inspiring and dedicated ambassador for DEBRA Australia doing all she could to help in raising funds for a cure as well as raising awareness of EB around the country. Her mother Linda Turner and former secretary of DEBRA SA Laraine Frost were by her side on this first day when we all spoke, along with Zlatko Kopecki who has spent many years tirelessly researching for a cure of this dreadful disease that sees these beautiful children born into a life of constant, unimaginable pain.
It was incredibly difficult not to become very emotionally effected by their journey and story of courage and selflessness and it was also on this day that we committed to helping in any way we could to raise funding and awareness for DEBRA Australia.
Around six years later it seems that the journey for all of us still continues with a focus to make a difference for the lives of The Butterfly Children & their families living with EB on a daily basis.
Sadly though in 2015 at just 26 years old Kate Turner passed away…
It was around this time that the idea of The Million Dollar Run was born…
This 3000km Adelaide to Brisbane Solo Charity Run for DEBRA Australia Incorporates Approximately 5 Marathons / Week For 4 Months & Has One Clear Objective - To Raise A Minimum Of 1 Million Dollars To Help The Courageous & Inspirational Butterfly Children Around The Country...
Traveling With My Wife Sonia & 9 Year Old Daughter Tiffany On This Epic Journey, We Will Be Starting Our Charity Adventure From Kate Turner’s Home Town Of Victor Harbor South Australia On Sunday The 23rd Of April on a mission to not only raise a minimum of $1,000,000 for these amazing children and young adults but to also raise enormous awareness around the country to this cruellest of diseases...
Over The Last Few Years I Have Had The Pleasure Of Meeting Many More Inspirational Butterfly Children & Their Families & Have Been Moved Constantly Through These Experiences By Their Strength & Incredible Spirit.
Around The Beginning of 2016 I Visited The Womens & Children Hospital In Adelaide for One of The E.B. Clinic Days. It Was On This Day I Met 13 Year old `Johnny` who suffers from another particularly rare and debilitating case of E.B. – but there was nothing at all debilitating about Johnny’s personality, cheeky country boy wit and charismatic energy. He let me know in our first conversation right there about his ideas relating to my training for The Million Dollar Run and I think it’s fair to say we hit it right off from that day!
I am extremely proud to say that Johnny is now an official ambassador for The Million Dollar Run and has joined me on several occasions to share his own story with many groups of people in a way that emotionally engages every audience who is blessed enough to hear him speak.
So Please Follow This Journey & Find It In Your Heart To Donate All That You Can – This Is A Cause That Is So Incredibly Worth Supporting…
A Video Glimpse Of What Life Is Like Living With EB
Linda Turner, Kate Turner & Laraine Frost
Johnny - Ambassador for The Million Dollar Run
Steven Murphy – PR Manager
Benn Gransden – Marketing Manager
Esha Dwight - My Nutritionist
Barry McBride – My Coach
& Of Course,
My Forever Supportive Wife Sonia &
My Beautiful Girl Tiffany…